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Dementia 2019 - One Day at a Time: lived experience of lovin | 53948

Journal of Health and Medical Research

Abstract

Dementia 2019 - One Day at a Time: lived experience of loving and caring for my Mother from diagnosis of vascular dementia to end of life, at home in rural Newfoundland.

Catherine Ann Kelly

While recovering from a stroke, Isabel was diagnosed with vascular dementia in 2009. A mere two months before, Isabel was living independently and extremely active in her community. Scared of what this would mean for her family, she spoke openly and courageously about her diagnosis and what was happening in her body. She lived each day at home with her family, surrounded by laughter, love and her growing grandchildren. One Day at a Time is the story of love. It’s the story of the Kelly family and their journey in supporting their Mother, Isabel, from diagnosis through to end of life. How they met the challenges of geography, energy, ignorance and how, together, they created a beautiful space for Isabel to remain whole and connected with her family. This journey intersected with multiple health care systems – three Canadian provinces in both urban and rural centers. Catherine will share insights on isolation, stigma, community care, of infusing life in the dying process and the power of love. Unflinching, One Day at a Time is a raw account of one families lived experience. Raising her children. She is certified as a Third Party Neutral and trained/certified in community engagement, facilitation, and peace circles. These skills have helped Catherine advocate for her Mother, others living with dementia and their caregivers.

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